Overview
The Australasian Dermatology Registry (ADR) is a national collaboration between dermatologists to capture real-world data enabling monitoring and surveillance of current and emerging treatments, and provides a platform for dermatology research, helping dermatologists provide the best care to their patients. The registry is facilitated and coordinated by the Skin Health Institute.
Despite the frequency of skin conditions such as psoriasis and atopic dermatitis, there is limited information regarding the management, treatment, outcomes, and quality of life for people living with these conditions.
The registry has been designed to include:
- Electronic consenting of participants through a QR code
- An online portal where participants can enter their demographic, family history, comorbidity, lifestyle, and quality of life data, minimising the data entry requirement at the sites
- An online database for clinicians to enter disease severity and treatment
- Online automated quarterly reports of the registry data, enabling registry users to see up-to-date registry analysis
- Access to de-identified data for research purposes to sites contributing data
- Opportunity to earn CPD for participating dermatologists
This information session features a series of experts for each disease state currently part of the ADR.
AGENDA
| Speaker | Topic |
|---|---|
| A/Prof Peter Foley | Development of new dermatology registry |
| A/Prof Patricia Lowe, Dr Lena Ly, A/Prof Erin McMeniman, Dr Michelle Rodrigues | Minimum dataset |
| Julie Armstrong | Key features of the registry |
| A/Prof Chris Baker | Benefits in participating |
A/Prof Erin McMeniman
BSc MBBS FRACGP MPH FACD PhD
A/Prof Erin McMeniman practices at Central Brisbane Dermatology and at Princess Alexandra Hospital where she conducts medical dermatology clinics and MDTs in cutaneous lymphoma and hidradenitis suppurativa. Erin completed her PhD in genotypic and phenotypic correlations in patients with multiple primary melanoma. Erin is Chair of the QLD Faculty of Dermatology, she also coordinates the Dermatology teaching program at University of QLD Medical School, is on the Australasian College of Dermatology Academic Research Committee, and Chair of the Aboriginal and Torres Strait Islander Committee.
A/Prof Patricia Lowe
MBBS(Hons) MMed FACD
A/Prof Patricia Lowe completed her medical degree at the University of Sydney in 1988 and was awarded a Master of Medicine in 1994 with a thesis in the field of angiogenesis in psoriasis. She obtained a Fellowship of the Australasian College of Dermatologists in 1997 and is currently its Honorary Secretary.
Patricia works in private and public practice and is a Senior Staff Specialist at Royal Prince Alfred Hospital. She is also a Clinical Senior Lecturer at the Central Sydney Medical School, University of Sydney. Her dermatology interests include biologic therapy of psoriasis, targeted dermatological care of solid organ transplant recipients and teaching medical students/registrars.
Julie Armstrong
BSc MClinResMeth
Julie Armstrong is the Clinical Registry Coordinator of the Australasian Dermatology Registry, and the previous Australasian Psoriasis Registry. She is an expert in developing and managing clinical registries having spent the last 15 years developing registries, maintaining large datasets, evaluating clinical outcomes and programs, and promoting clinical research in a range of chronic conditions including cancer, mental health, diabetes and currently skin conditions.
